My first attack of Sarcoidosis was back in the 70's, and was diagnosed by the then medical profession as suffering from Toxoplasmosis, so no treatment was forth coming (steroids).
In 2004 I had a further episode this time it was severe and at first it was thought to be, Trench Foot or Lymes disease or Cat Scratch to name a few options or cancer. I spent four and a half years back and forth to the Royal Marston in Sutton, had multitudes of tests, they found a rotting savliva gland in the left hand side of my neck as a result but nothing else.
At this point I asked my GP to get me another opinion, this time a professor in St. Georges Hospital, Lambeth started on a regime of tests and more biopsies and eventually came up with Sarcoidosis. The Steroid treatment meant I became Diabetic, so I ended up on an immunosuppressant and various other drugs for the multitude of symptoms too long to list as a result of Sarcoidosis.
At long last there is a simple blood test ACE which shows up the Sarcoidosis marker.
Yes there are others that know how you feel.
Life is good like that, at times there are very occasional days where you want to be alive and because you say nothing and others cannot see anything physically wrong with you they label you as being a scrounger or such like.
Not a rant just a fact of life, if you have good health think yourself lucky because it could be you that wakes up tomorrow and your life is turned upside down and changed forever.